Publisher DOI: 10.1186/s13023-021-01748-x
Title: Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia : a Swedish-German cross-sectional study
Language: English
Authors: Witt, Stefanie 
Dellenmark-Blom, Michaela 
Kuckuck, Susanne 
Dingemann, Jens 
Abrahamsson, Kate 
Dingemann, Carmen 
Chaplin, John Eric 
Ure, Benno 
Bullinger, Monika 
Gatzinsky, Vladimir 
Jönsson, Linus 
Quitmann, Julia Hannah  
Keywords: Congenital malformation; Esophageal atresia; Health-relatedquality of life; Parent-child agreement; Rare disease
Issue Date: 6-Mar-2021
Publisher: BioMed Central
Journal or Series Name: Orphanet journal of rare diseases 
Volume: 16
Issue: 1
Abstract: 
Background

The aim was to compare parent and child-reported health-related quality of life (HRQOL) of children born with esophageal atresia (EA) and determine factors that affect the level of parent–child agreement.

Methods

We included 63 parent–child dyads of children born with EA aged 8–18 from Germany and Sweden. The generic PedsQL 4.0™ questionnaire and the condition-speci...
URI: https://hdl.handle.net/20.500.12738/17209
ISSN: 1750-1172
Review status: This version was peer reviewed (peer review)
Institute: Universitätsklinikum Hamburg-Eppendorf 
Type: Article
Additional note: article number: 120 (2021)
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