Publisher DOI: | 10.1007/8904_2017_11 |
Title: | Development and psychometric evaluation of the MetabQoL 1.0 : a quality of life questionnaire for paediatric patients with intoxication-type inborn errors of metabolism |
Language: | English |
Authors: | Zeltner, Nina A. Baumgartner, Matthias R. Bondarenko, Aljona Ensenauer, Regina Karall, Daniela Kölker, Stefan Mühlhausen, Chris Scholl-Bürgi, Sabine Thimm, Eva Quitmann, Julia ![]() Burgard, Peter Landolt, Markus A. Huemer, Martina |
Keywords: | Inborn errors of metabolism; Organic acidurias; Quality of life; Questionnaire; Urea cycle disorders |
Issue Date: | 1-Mar-2017 |
Publisher: | Springer |
Journal or Series Name: | JIMD reports |
Volume: | 37 |
Startpage: | 27 |
Endpage: | 35 |
URI: | https://hdl.handle.net/20.500.12738/17224 |
ISSN: | 2192-8312 |
Review status: | This version was peer reviewed (peer review) |
Institute: | Universitätsklinikum Hamburg-Eppendorf |
Type: | Article |
Appears in Collections: | Publications without full text |
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