Development and psychometric evaluation of the MetabQoL 1.0 : a quality of life questionnaire for paediatric patients with intoxication-type inborn errors of metabolism

Zeltner, Nina A.; Baumgartner, Matthias R.; Bondarenko, Aljona; Ensenauer, Regina; Karall, Daniela; Kölker, Stefan; Mühlhausen, Chris; Scholl-Bürgi, Sabine; Thimm, Eva; Quitmann, Julia; Burgard, Peter; Landolt, Markus A.; Huemer, Martina

doi:10.1007/8904_2017_11

Publisher DOI:	10.1007/8904_2017_11
Title:	Development and psychometric evaluation of the MetabQoL 1.0 : a quality of life questionnaire for paediatric patients with intoxication-type inborn errors of metabolism
Language:	English
Authors:	Zeltner, Nina A. Baumgartner, Matthias R. Bondarenko, Aljona Ensenauer, Regina Karall, Daniela Kölker, Stefan Mühlhausen, Chris Scholl-Bürgi, Sabine Thimm, Eva Quitmann, Julia Burgard, Peter Landolt, Markus A. Huemer, Martina
Keywords:	Inborn errors of metabolism; Organic acidurias; Quality of life; Questionnaire; Urea cycle disorders
Issue Date:	1-Mar-2017
Publisher:	Springer
Journal or Series Name:	JIMD reports
Volume:	37
Startpage:	27
Endpage:	35
URI:	https://hdl.handle.net/20.500.12738/17224
ISSN:	2192-8312
Review status:	This version was peer reviewed (peer review)
Institute:	Universitätsklinikum Hamburg-Eppendorf
Type:	Article
Appears in Collections:	Publications without full text