Publisher DOI: | 10.3390/ijerph192214923 | Title: | The Chinese Mandarin version of the esophageal-atresia-quality-of-life questionnaires for children and adolescents : evaluation of linguistic and content validity | Language: | English | Authors: | Li, Siqi Dellenmark-Blom, Michaela Zhao, Yong Gu, Yichao Li, Shuangshuang Yang, Shen Quitmann, Julia H. ![]() Huang, Jinshi |
Editor: | Borman, Barry Lupo, Philip J. |
Keywords: | cognitive debriefing; content validity; cross-culturaltranslation; esophageal atresia; quality of life | Issue Date: | 13-Nov-2022 | Publisher: | MDPI | Journal or Series Name: | International journal of environmental research and public health : IJERPH | Volume: | 19 | Issue: | 22 | Abstract: | Background: After repair of esophageal atresia (EA), children risk digestive and respiratory morbidity, but knowledge of their health-related quality of life (HRQOL) in China is lacking. The EA-QOL questionnaires were developed in Sweden and Germany to evaluate condition-specific HRQOL in children with EA aged 2–7 and 8–17. This study aimed to evaluate the linguistic and content validity of the Chinese Mandarin version of the EA-QOL questionnaires. Methods: The procedure was conducted in compliance with international standards, including a forward-backward translation procedure, expert reviews, and cognitive debriefing interviews with 14 Chinese families of children with EA (parents of 8 children aged 2–7/6 children aged 8–17 and their parents). Results: Following forward-backward translation, minor issues were identified and solved. In interviews, all participants rated all EA-QOL items easy to understand, none expressed negative emotions about them and most described them comprehensive and relevant for EA. Leading from cognitive debriefing, three EA-QOL items in the questionnaire version for children aged 2–7 and three EA-QOL items in the questionnaire version for children aged 8–17 were modified in the Chinese language to improve cultural appropriateness and/or clarity. Conclusion: The Chinese Mandarin version of the EA-QOL questionnaires achieved satisfactory linguistic and content validity. This can help increase focus of HRQOL in research and clinical practice of children with EA in China. |
URI: | https://hdl.handle.net/20.500.12738/17234 | ISSN: | 1660-4601 | Review status: | This version was peer reviewed (peer review) | Institute: | Universitätsklinikum Hamburg-Eppendorf | Type: | Article | Additional note: | article number: 14923 |
Appears in Collections: | Publications without full text |
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