Publisher DOI: 10.3390/ijerph192214923
Title: The Chinese Mandarin version of the esophageal-atresia-quality-of-life questionnaires for children and adolescents : evaluation of linguistic and content validity
Language: English
Authors: Li, Siqi 
Dellenmark-Blom, Michaela 
Zhao, Yong 
Gu, Yichao 
Li, Shuangshuang 
Yang, Shen 
Quitmann, Julia H.  
Huang, Jinshi 
Editor: Borman, Barry 
Lupo, Philip J. 
Keywords: cognitive debriefing; content validity; cross-culturaltranslation; esophageal atresia; quality of life
Issue Date: 13-Nov-2022
Publisher: MDPI
Journal or Series Name: International journal of environmental research and public health : IJERPH 
Volume: 19
Issue: 22
Abstract: 
Background: After repair of esophageal atresia (EA), children risk digestive and respiratory morbidity, but knowledge of their health-related quality of life (HRQOL) in China is lacking. The EA-QOL questionnaires were developed in Sweden and Germany to evaluate condition-specific HRQOL in children with EA aged 2–7 and 8–17. This study aimed to evaluate the linguistic and content validity of the Chinese Mandarin version of the EA-QOL questionnaires. Methods: The procedure was conducted in compliance with international standards, including a forward-backward translation procedure, expert reviews, and cognitive debriefing interviews with 14 Chinese families of children with EA (parents of 8 children aged 2–7/6 children aged 8–17 and their parents). Results: Following forward-backward translation, minor issues were identified and solved. In interviews, all participants rated all EA-QOL items easy to understand, none expressed negative emotions about them and most described them comprehensive and relevant for EA. Leading from cognitive debriefing, three EA-QOL items in the questionnaire version for children aged 2–7 and three EA-QOL items in the questionnaire version for children aged 8–17 were modified in the Chinese language to improve cultural appropriateness and/or clarity. Conclusion: The Chinese Mandarin version of the EA-QOL questionnaires achieved satisfactory linguistic and content validity. This can help increase focus of HRQOL in research and clinical practice of children with EA in China.
URI: https://hdl.handle.net/20.500.12738/17234
ISSN: 1660-4601
Review status: This version was peer reviewed (peer review)
Institute: Universitätsklinikum Hamburg-Eppendorf 
Type: Article
Additional note: article number: 14923
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