Understanding, assessing and improving health-related quality of life of young people with achondroplasia : a collaboration between a patient organization and academic medicine

Witt, Stefanie; Rohenkohl, Anja; Bullinger, Monika; Sommer, Rachel; Kahrs, Sabine; Klingebiel, Karl-Heinz; Klingebiel, Ruzena; Quitmann, Julia

doi:10.17458/per.vol15.2017.wrm.improvinghealthrelatedquality

Publisher URL:	https://www.pediatricendoreviews.com/volume-15-sup1--2017 https://web.archive.org/web/20241130122257/https://www.pediatricendoreviews.com/volume-15-sup1--2017
Publisher DOI:	10.17458/per.vol15.2017.wrm.improvinghealthrelatedquality
Title:	Understanding, assessing and improving health-related quality of life of young people with achondroplasia : a collaboration between a patient organization and academic medicine
Language:	English
Authors:	Witt, Stefanie Rohenkohl, Anja Bullinger, Monika Sommer, Rachel Kahrs, Sabine Klingebiel, Karl-Heinz Klingebiel, Ruzena Quitmann, Julia
Keywords:	Achondroplasia; Children and adolescents; Health-related Quality of Life; Parents; Young adults
Issue Date:	Nov-2017
Publisher:	Y.S. Medical Media Ltd.
Journal or Series Name:	Pediatric endocrinology reviews
Volume:	15
Issue:	Suppl 1
Startpage:	109
Endpage:	118
URI:	https://hdl.handle.net/20.500.12738/17235
ISSN:	1565-4753
Review status:	This version was peer reviewed (peer review)
Institute:	Universitätsklinikum Hamburg-Eppendorf
Type:	Article
Appears in Collections:	Publications without full text