Understanding, assessing and improving health-related quality of life of young people with achondroplasia : a collaboration between a patient organization and academic medicine

Witt, Stefanie; Rohenkohl, Anja; Bullinger, Monika; Sommer, Rachel; Kahrs, Sabine; Klingebiel, Karl-Heinz; Klingebiel, Ruzena; Quitmann, Julia

doi:10.17458/per.vol15.2017.wrm.improvinghealthrelatedquality

Verlagslink:	https://www.pediatricendoreviews.com/volume-15-sup1--2017 https://web.archive.org/web/20241130122257/https://www.pediatricendoreviews.com/volume-15-sup1--2017
Verlagslink DOI:	10.17458/per.vol15.2017.wrm.improvinghealthrelatedquality
Titel:	Understanding, assessing and improving health-related quality of life of young people with achondroplasia : a collaboration between a patient organization and academic medicine
Sprache:	Englisch
Autorenschaft:	Witt, Stefanie Rohenkohl, Anja Bullinger, Monika Sommer, Rachel Kahrs, Sabine Klingebiel, Karl-Heinz Klingebiel, Ruzena Quitmann, Julia
Schlagwörter:	Achondroplasia; Children and adolescents; Health-related Quality of Life; Parents; Young adults
Erscheinungsdatum:	Nov-2017
Verlag:	Y.S. Medical Media Ltd.
Zeitschrift oder Schriftenreihe:	Pediatric endocrinology reviews
Zeitschriftenband:	15
Zeitschriftenausgabe:	Suppl 1
Anfangsseite:	109
Endseite:	118
URI:	https://hdl.handle.net/20.500.12738/17235
ISSN:	1565-4753
Begutachtungsstatus:	Diese Version hat ein Peer-Review-Verfahren durchlaufen (Peer Review)
Einrichtung:	Universitätsklinikum Hamburg-Eppendorf
Dokumenttyp:	Zeitschriftenbeitrag
Enthalten in den Sammlungen:	Publications without full text