Understanding, assessing and improving health-related quality of life of young people with achondroplasia : a collaboration between a patient organization and academic medicine

Witt, Stefanie; Rohenkohl, Anja; Bullinger, Monika; Sommer, Rachel; Kahrs, Sabine; Klingebiel, Karl-Heinz; Klingebiel, Ruzena; Quitmann, Julia

doi:10.17458/per.vol15.2017.wrm.improvinghealthrelatedquality

DC Element	Wert	Sprache
dc.contributor.author	Witt, Stefanie	-
dc.contributor.author	Rohenkohl, Anja	-
dc.contributor.author	Bullinger, Monika	-
dc.contributor.author	Sommer, Rachel	-
dc.contributor.author	Kahrs, Sabine	-
dc.contributor.author	Klingebiel, Karl-Heinz	-
dc.contributor.author	Klingebiel, Ruzena	-
dc.contributor.author	Quitmann, Julia	-
dc.date.accessioned	2025-03-03T12:40:24Z	-
dc.date.available	2025-03-03T12:40:24Z	-
dc.date.issued	2017-11	-
dc.identifier.issn	1565-4753	en_US
dc.identifier.uri	https://hdl.handle.net/20.500.12738/17235	-
dc.language.iso	en	en_US
dc.publisher	Y.S. Medical Media Ltd.	en_US
dc.relation.ispartof	Pediatric endocrinology reviews	en_US
dc.subject	Achondroplasia	en_US
dc.subject	Children and adolescents	en_US
dc.subject	Health-related Quality of Life	en_US
dc.subject	Parents	en_US
dc.subject	Young adults	en_US
dc.subject.ddc	610: Medizin	en_US
dc.title	Understanding, assessing and improving health-related quality of life of young people with achondroplasia : a collaboration between a patient organization and academic medicine	en
dc.type	Article	en_US
dc.description.version	PeerReviewed	en_US
tuhh.container.endpage	118	en_US
tuhh.container.issue	Suppl 1	en_US
tuhh.container.startpage	109	en_US
tuhh.container.volume	15	en_US
tuhh.oai.show	true	en_US
tuhh.publication.institute	Universitätsklinikum Hamburg-Eppendorf	en_US
tuhh.publisher.doi	10.17458/per.vol15.2017.wrm.improvinghealthrelatedquality	-
tuhh.publisher.url	https://www.pediatricendoreviews.com/volume-15-sup1--2017	-
tuhh.publisher.url	https://web.archive.org/web/20241130122257/https://www.pediatricendoreviews.com/volume-15-sup1--2017	-
tuhh.type.opus	(wissenschaftlicher) Artikel	-
dc.type.casrai	Journal Article	-
dc.type.dini	article	-
dc.type.driver	article	-
dc.type.status	info:eu-repo/semantics/publishedVersion	en_US
dcterms.DCMIType	Text	-
item.creatorGND	Witt, Stefanie	-
item.creatorGND	Rohenkohl, Anja	-
item.creatorGND	Bullinger, Monika	-
item.creatorGND	Sommer, Rachel	-
item.creatorGND	Kahrs, Sabine	-
item.creatorGND	Klingebiel, Karl-Heinz	-
item.creatorGND	Klingebiel, Ruzena	-
item.creatorGND	Quitmann, Julia	-
item.grantfulltext	none	-
item.openairetype	Article	-
item.fulltext	No Fulltext	-
item.languageiso639-1	en	-
item.cerifentitytype	Publications	-
item.creatorOrcid	Witt, Stefanie	-
item.creatorOrcid	Rohenkohl, Anja	-
item.creatorOrcid	Bullinger, Monika	-
item.creatorOrcid	Sommer, Rachel	-
item.creatorOrcid	Kahrs, Sabine	-
item.creatorOrcid	Klingebiel, Karl-Heinz	-
item.creatorOrcid	Klingebiel, Ruzena	-
item.creatorOrcid	Quitmann, Julia	-
item.openairecristype	http://purl.org/coar/resource_type/c_6501	-
crisitem.author.dept	Department Soziale Arbeit	-
crisitem.author.dept	Department Soziale Arbeit	-
crisitem.author.orcid	0000-0002-0876-4211	-
crisitem.author.parentorg	Fakultät Wirtschaft und Soziales	-
crisitem.author.parentorg	Fakultät Wirtschaft und Soziales	-
Enthalten in den Sammlungen:	Publications without full text