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Erscheinungsdatum	Dokument in REPOSIT	Zugang zum Volltext	Titel	Typ	Autorenschaft
15-Mai-2019			Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia	Article	Bloemeke, Janika ; Sommer, Rachel ; Witt, Stefanie ; Bullinger, Monika ; Nordon, Clementine ; Badia, Francisco Javier ; González, Felipe Luna ; Leiva-Gea, Antonio ; de Borja Delgado Rufino, Francisco ; Mayoral-Cleries, Fermı́n ; Romero-Sanchiz, Pablo ; Clamagirand Saiz, Verónica ; Nogueira-Arjona, Raquel ; Mohnike, Klaus ; Quitmann, Julia
29-Apr-2019			Quality of life of short-statured children born small for gestational age or idiopathic growth hormone deficiency within 1 year of growth hormone treatment	Article	Quitmann, Julia  ; Bloemeke, Janika ; Silva, Neuza ; Bullinger, Monika ; Witt, Stefanie ; Akkurt, Ilker ; Dunstheimer, Desiree ; Vogel, Christian ; Böttcher, Volker ; Kuhnle Krahl, Ursula ; Bettendorf, Markus ; Schönau, Eckhard ; Fricke-Otto, Susanne ; Keller, Alexandra ; Mohnike, Klaus ; Dörr, Helmuth Günther
16-Dez-2022			Health-related quality of life and patient-reported outcome measurements in patients with cystinosis	Article	Witt, Stefanie ; Kristensen, Kaja ; Hohenfellner, Katharina ; Quitmann, Julia
13-Sep-2014			Lebensqualität bei Kindern, Jugendlichen und jungen Erwachsenen mit Achondroplasie	Article	Rohenkohl, Anja C. ; Bullinger, Monika ; Quitmann, Julia
6-Mär-2019			First-year predictors of health-related quality of life changes in short-statured children treated with human growth hormone	Article	Quitmann, Julia  ; Bloemeke, Janika ; Dörr, Helmuth Günther ; Bullinger, Monika ; Witt, Stefanie ; Silva, Neuza
2-Apr-2015			Evaluation of the American-English quality of life in Short Stature Youth (QoLISSY) questionnaire in the United States	Article	Bullinger, Monika ; Sommer, Rachel ; Pleil, Andreas ; Mauras, Nelly ; Ross, Judith ; Newfield, Ron ; Silverman, Lawrence ; Rohenkohl, Anja ; Fox, Janet ; Quitmann, Julia
18-Mär-2019			Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment	Article	Bloemeke, Janika ; Silva, Neuza ; Bullinger, Monika ; Witt, Stefanie ; Dörr, Helmuth Günther ; Quitmann, Julia
26-Sep-2019			Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in a randomized open-label comparator trial in idiopathic short stature	Article	Bloemeke, Janika ; Balacano Valdez, Richelle ; Mauras, Nelly ; Mericq, Veronica ; Ross, Judith ; Permuy, Joseph ; Quitmann, Julia  ; Bullinger, Monika
27-Sep-2018			Generic health-related quality of life after repair of esophageal atresia and its determinants within a German-Swedish cohort	Article	Flieder, Sofie ; Dellenmark-Blom, Michaela ; Witt, Stefanie ; Dingemann, Carmen ; Quitmann, Julia H.  ; Jönsson, Linus ; Gatzinsky, Vladimir ; Chaplin, John Eric ; Gómez Dammeier, Barbara ; Bullinger, Monika ; Ure, Benno M. ; Abrahamsson, Kate ; Dingemann, Jens
9-Jan-2014			HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instruments	Article	Silva, Neuza ; Bullinger, Monika ; Quitmann, Julia  ; Ravens-Sieberer, Ulrike ; Rohenkohl, Anja
22-Jan-2019			Exploring the potential of a pretend play intervention in young patients with leukemia	Article	Witt, Stefanie ; Escherich, Gabriele ; Rutkowski, Stefan ; Kappelhoff, Gerhard ; Frygner-Holm, Sara ; Russ, Sandra ; Bullinger, Monika ; Quitmann, Julia
21-Okt-2016			Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports : do family and social relationships matter?	Article	Quitmann, Julia  ; Rohenkohl, Anja ; Sommer, Rachel ; Bullinger, Monika ; Silva, Neuza
19-Jun-2018			Quality of life in parents of children born with esophageal atresia	Article	Witt, Stefanie ; Dellenmark-Blom, Michaela ; Dingemann, Jens ; Dingemann, Carmen ; Ure, Benno M. ; Gomez, Barbara ; Bullinger, Monika ; Quitmann, Julia
17-Feb-2018			The psychometric evaluation of the quality of life in short stature youth (QoLISSY) instrument for German children born small for gestational age	Article	Sommer, Rachel ; Blömeke, Janika ; Bullinger, Monika ; Quitmann, Julia
16-Sep-2018			Health-related quality of life experiences in children and adolescents born with esophageal atresia : a Swedish-German focus group study	Article	Witt, Stefanie ; Dellenmark-Blom, Michaela ; Flieder, Sofie ; Dingemann, Jens ; Abrahamsson, Kate ; Jönsson, Linus ; Gatzinsky, Vladimir ; Chaplin, John Eric ; Ure, Benno ; Dingemann, Carmen ; Bullinger, Monika ; Sommer, Rachel ; Quitmann, Julia Hannah
30-Jun-2022			Reliability and validity of the Polish version of the Esophageal-Atresia-Quality-of-Life questionnaires to assess condition-specific quality of Life in children and adolescents born with esophageal atresia	Article	Rozensztrauch, Anna ; Smigiel, Robert ; Patkowski, Dariusz ; Gerus, Sylwester ; Kłaniewska, Magdalena ; Quitmann, Julia Hannah  ; Dellenmark-Blom, Michaela
Nov-2017			Understanding, assessing and improving health-related quality of life of young people with achondroplasia : a collaboration between a patient organization and academic medicine	Article	Witt, Stefanie ; Rohenkohl, Anja ; Bullinger, Monika ; Sommer, Rachel ; Kahrs, Sabine ; Klingebiel, Karl-Heinz ; Klingebiel, Ruzena ; Quitmann, Julia
13-Nov-2022			The Chinese Mandarin version of the esophageal-atresia-quality-of-life questionnaires for children and adolescents : evaluation of linguistic and content validity	Article	Li, Siqi ; Dellenmark-Blom, Michaela ; Zhao, Yong ; Gu, Yichao ; Li, Shuangshuang ; Yang, Shen ; Quitmann, Julia H.  ; Huang, Jinshi
11-Sep-2019			Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia : a German cross-sectional study	Article	Witt, Stefanie ; Bloemeke, Janika ; Bullinger, Monika ; Dingemann, Jens ; Dellenmark-Blom, Michaela ; Quitmann, Julia
8-Mär-2018			Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health : the Achondroplasia Personal Life Experience Scale (APLES)	Article	Bloemeke, Janika ; Sommer, Rachel ; Witt, Stefanie ; Dabs, Michaela ; Badia, Francisco Javier ; Bullinger, Monika ; Quitmann, Julia