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Collection's Items (Sorted by Einreichdatum in Absteigend order): 261 to 280 of 9670
ErscheinungsdatumDokument in REPOSITZugang zum VolltextTitelTypAutorenschaft
15-Mai-2019Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasiaArticleBloemeke, Janika ; Sommer, Rachel ; Witt, Stefanie ; Bullinger, Monika ; Nordon, Clementine ; Badia, Francisco Javier ; González, Felipe Luna ; Leiva-Gea, Antonio ; de Borja Delgado Rufino, Francisco ; Mayoral-Cleries, Fermı́n ; Romero-Sanchiz, Pablo ; Clamagirand Saiz, Verónica ; Nogueira-Arjona, Raquel ; Mohnike, Klaus ; Quitmann, Julia  
29-Apr-2019Quality of life of short-statured children born small for gestational age or idiopathic growth hormone deficiency within 1 year of growth hormone treatmentArticleQuitmann, Julia  ; Bloemeke, Janika ; Silva, Neuza ; Bullinger, Monika ; Witt, Stefanie ; Akkurt, Ilker ; Dunstheimer, Desiree ; Vogel, Christian ; Böttcher, Volker ; Kuhnle Krahl, Ursula ; Bettendorf, Markus ; Schönau, Eckhard ; Fricke-Otto, Susanne ; Keller, Alexandra ; Mohnike, Klaus ; Dörr, Helmuth Günther 
16-Dez-2022Health-related quality of life and patient-reported outcome measurements in patients with cystinosisArticleWitt, Stefanie ; Kristensen, Kaja ; Hohenfellner, Katharina ; Quitmann, Julia  
13-Sep-2014Lebensqualität bei Kindern, Jugendlichen und jungen Erwachsenen mit AchondroplasieArticleRohenkohl, Anja C. ; Bullinger, Monika ; Quitmann, Julia  
6-Mär-2019First-year predictors of health-related quality of life changes in short-statured children treated with human growth hormoneArticleQuitmann, Julia  ; Bloemeke, Janika ; Dörr, Helmuth Günther ; Bullinger, Monika ; Witt, Stefanie ; Silva, Neuza 
2-Apr-2015Evaluation of the American-English quality of life in Short Stature Youth (QoLISSY) questionnaire in the United StatesArticleBullinger, Monika ; Sommer, Rachel ; Pleil, Andreas ; Mauras, Nelly ; Ross, Judith ; Newfield, Ron ; Silverman, Lawrence ; Rohenkohl, Anja ; Fox, Janet ; Quitmann, Julia  
18-Mär-2019Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatmentArticleBloemeke, Janika ; Silva, Neuza ; Bullinger, Monika ; Witt, Stefanie ; Dörr, Helmuth Günther ; Quitmann, Julia  
26-Sep-2019Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in a randomized open-label comparator trial in idiopathic short statureArticleBloemeke, Janika ; Balacano Valdez, Richelle ; Mauras, Nelly ; Mericq, Veronica ; Ross, Judith ; Permuy, Joseph ; Quitmann, Julia  ; Bullinger, Monika 
27-Sep-2018Generic health-related quality of life after repair of esophageal atresia and its determinants within a German-Swedish cohortArticleFlieder, Sofie ; Dellenmark-Blom, Michaela ; Witt, Stefanie ; Dingemann, Carmen ; Quitmann, Julia H.  ; Jönsson, Linus ; Gatzinsky, Vladimir ; Chaplin, John Eric ; Gómez Dammeier, Barbara ; Bullinger, Monika ; Ure, Benno M. ; Abrahamsson, Kate ; Dingemann, Jens 
9-Jan-2014HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instrumentsArticleSilva, Neuza ; Bullinger, Monika ; Quitmann, Julia  ; Ravens-Sieberer, Ulrike ; Rohenkohl, Anja 
22-Jan-2019Exploring the potential of a pretend play intervention in young patients with leukemiaArticleWitt, Stefanie ; Escherich, Gabriele ; Rutkowski, Stefan ; Kappelhoff, Gerhard ; Frygner-Holm, Sara ; Russ, Sandra ; Bullinger, Monika ; Quitmann, Julia  
21-Okt-2016Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports : do family and social relationships matter?ArticleQuitmann, Julia  ; Rohenkohl, Anja ; Sommer, Rachel ; Bullinger, Monika ; Silva, Neuza 
19-Jun-2018Quality of life in parents of children born with esophageal atresiaArticleWitt, Stefanie ; Dellenmark-Blom, Michaela ; Dingemann, Jens ; Dingemann, Carmen ; Ure, Benno M. ; Gomez, Barbara ; Bullinger, Monika ; Quitmann, Julia  
17-Feb-2018The psychometric evaluation of the quality of life in short stature youth (QoLISSY) instrument for German children born small for gestational ageArticleSommer, Rachel ; Blömeke, Janika ; Bullinger, Monika ; Quitmann, Julia  
16-Sep-2018Health-related quality of life experiences in children and adolescents born with esophageal atresia : a Swedish-German focus group studyArticleWitt, Stefanie ; Dellenmark-Blom, Michaela ; Flieder, Sofie ; Dingemann, Jens ; Abrahamsson, Kate ; Jönsson, Linus ; Gatzinsky, Vladimir ; Chaplin, John Eric ; Ure, Benno ; Dingemann, Carmen ; Bullinger, Monika ; Sommer, Rachel ; Quitmann, Julia Hannah  
30-Jun-2022Reliability and validity of the Polish version of the Esophageal-Atresia-Quality-of-Life questionnaires to assess condition-specific quality of Life in children and adolescents born with esophageal atresiaArticleRozensztrauch, Anna ; Smigiel, Robert ; Patkowski, Dariusz ; Gerus, Sylwester ; Kłaniewska, Magdalena ; Quitmann, Julia Hannah  ; Dellenmark-Blom, Michaela 
Nov-2017Understanding, assessing and improving health-related quality of life of young people with achondroplasia : a collaboration between a patient organization and academic medicineArticleWitt, Stefanie ; Rohenkohl, Anja ; Bullinger, Monika ; Sommer, Rachel ; Kahrs, Sabine ; Klingebiel, Karl-Heinz ; Klingebiel, Ruzena ; Quitmann, Julia  
13-Nov-2022The Chinese Mandarin version of the esophageal-atresia-quality-of-life questionnaires for children and adolescents : evaluation of linguistic and content validityArticleLi, Siqi ; Dellenmark-Blom, Michaela ; Zhao, Yong ; Gu, Yichao ; Li, Shuangshuang ; Yang, Shen ; Quitmann, Julia H.  ; Huang, Jinshi 
11-Sep-2019Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia : a German cross-sectional studyArticleWitt, Stefanie ; Bloemeke, Janika ; Bullinger, Monika ; Dingemann, Jens ; Dellenmark-Blom, Michaela ; Quitmann, Julia  
8-Mär-2018Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health : the Achondroplasia Personal Life Experience Scale (APLES)ArticleBloemeke, Janika ; Sommer, Rachel ; Witt, Stefanie ; Dabs, Michaela ; Badia, Francisco Javier ; Bullinger, Monika ; Quitmann, Julia  
Collection's Items (Sorted by Einreichdatum in Absteigend order): 261 to 280 of 9670