Collection's Items (Sorted by Einreichdatum in Absteigend order): 521 to 540 of 9905
| Erscheinungsdatum | Dokument in REPOSIT | Zugang zum Volltext | Titel | Typ | Autorenschaft |
| 11-Sep-2019 |  | | Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia : a German cross-sectional study | Article | Witt, Stefanie ; Bloemeke, Janika ; Bullinger, Monika ; Dingemann, Jens ; Dellenmark-Blom, Michaela ; Quitmann, Julia  |
| 8-Mär-2018 | | | Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health : the Achondroplasia Personal Life Experience Scale (APLES) | Article | Bloemeke, Janika ; Sommer, Rachel ; Witt, Stefanie ; Dabs, Michaela ; Badia, Francisco Javier ; Bullinger, Monika ; Quitmann, Julia |
| 10-Apr-2017 | | | Validation of the Italian quality of life in Short Stature Youth (QoLISSY) questionnaire | Article | Quitmann, Julia ; Giammarco, A. ; Maghnie, Mohamad ; Napoli, Flavia ; Di Giovanni, Ilaria ; Carducci, Chiara ; Mohn, Angelika ; Bullinger, Monika ; Sommer, Rachel |
| 5-Mai-2017 | | | Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia | Article | Dellenmark-Blom, Michaela ; Abrahamsson, Kate ; Quitmann, Julia H. ; Sommer, Rachel ; Witt, Stefanie ; Dingemann, Jens ; Flieder, Sofie ; Jönsson, Linus ; Gatzinsky, Vladimir ; Bullinger, Monika ; Ure, Benno M. ; Dingemann, Carmen ; Chaplin, John Eric |
| 9-Feb-2019 | | | Validation of the Greek version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire | Article | Drosatou, Chrysoula ; Vlachopapadopoulou, Elpis-Athina ; Bullinger, Monika ; Quitmann, Julia ; Silva, Neuza ; Salemi, Georgia ; Pavlopoulou, Ioanna ; Michalacos, Stefanos ; Tsoumakas, Konstantinos |
| 27-Sep-2017 | | | Children's psychosocial functioning and parents' quality of life in paediatric short stature : the mediating role of caregiving stress | Article | Silva, Neuza ; Bullinger, Monika ; Sommer, Rachel ; Rohenkohl, Anja ; Witt, Stefanie ; Quitmann, Julia |
| 16-Sep-2016 | | | An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia : development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES) | Article | Sommer, Rachel ; Blömeke, Janika ; Dabs, Michaela ; Witt, Stefanie ; Bullinger, Monika ; Quitmann, Julia |
| 28-Jul-2016 | | | Coping strategies used by children and adolescents born with esophageal atresia : a focus group study obtaining the child and parent perspective | Article | Dellenmark-Blom, Michaela ; Chaplin, John Eric ; Jönsson, Linus ; Gatzinsky, Vladimir ; Quitmann, Julia H. ; Abrahamsson, Kate |
| Sep-2024 | | | Aktivierung von selbsterstellten immateriellen Vermögenswerten als bilanzpolitisches Mittel in der Corona-Krise? | Article | Behrendt-Geisler, Anneke |
| 1-Mär-2017 | | | Development and psychometric evaluation of the MetabQoL 1.0 : a quality of life questionnaire for paediatric patients with intoxication-type inborn errors of metabolism | Article | Zeltner, Nina A. ; Baumgartner, Matthias R. ; Bondarenko, Aljona ; Ensenauer, Regina ; Karall, Daniela ; Kölker, Stefan ; Mühlhausen, Chris ; Scholl-Bürgi, Sabine ; Thimm, Eva ; Quitmann, Julia ; Burgard, Peter ; Landolt, Markus A. ; Huemer, Martina |
| 30-Jun-2014 | | | Quality of life as patient-reported outcomes : principles of assessment | Article | Bullinger, Monika ; Quitmann, Julia |
| 1-Jan-2016 | | | Living with intoxication-type inborn errors of metabolism : a qualitative analysis of interviews with paediatric patients and their parents | Article | Zeltner, Nina A. ; Landolt, Markus A. ; Baumgartner, Matthias R. ; Lageder, Sarah ; Quitmann, Julia ; Sommer, Rachel ; Karall, Daniela ; Mühlhausen, Chris ; Schlune, Andrea ; Scholl-Bürgi, Sabine ; Huemer, Martina |
| 1-Okt-2018 | | | The esophageal-atresia-quality-of-life questionnaires : feasibility, validity and reliability in Sweden and Germany | Article | Dellenmark-Blom, Michaela ; Dingemann, Jens ; Witt, Stefanie ; Quitmann, Julia H. ; Jönsson, Linus ; Gatzinsky, Vladimir ; Chaplin, John Eric ; Bullinger, Monika ; Flieder, Sofie ; Ure, Benno M. ; Dingemann, Carmen ; Abrahamsson, Kate |
| Jul-2024 | | | Einlullen, verschleiern, Zweifel säen : wie die Fossillobby unsere Zukunft gefährdet | Article | Stöcker, Christian |
| 14-Feb-2022 | | | Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO) : study protocol for a controlled multi-center cohort study | Article | Hebestreit, Helge ; Zeidler, Cornelia ; Schippers, Christopher ; de Zwaan, Martina ; Deckert, Jürgen ; Heuschmann, Peter ; Krauth, Christian ; Bullinger, Monika ; Berger, Alexandra ; Berneburg, Mark ; Brandstetter, Lilly ; Deibele, Anna ; Dieris-Hirche, Jan ; Graeßner, Holm ; Gündel, Harald ; Herpertz, Stephan ; Heuft, Gereon ; Lapstich, Anne-Marie ; Lücke, Thomas ; Maisch, Tim ; Mundlos, Christine ; Petermann-Meyer, Andrea ; Müller, Susanne ; Ott, Stephan ; Pfister, Lisa ; Quitmann, Julia ; Romanos, Marcel ; Rutsch, Frank ; Schaubert, Kristina ; Schubert, Katharina ; Schulz, Jörg Bernhard ; Schweiger, Susann ; Tüscher, Oliver ; Ungethüm, Kathrin ; Wagner, Thomas O. F. ; Haas, Kirsten |
| 27-Nov-2021 | | | Rare pediatric diseases and pathways to psychosocial care : a qualitative interview study with professional experts working with affected families in Germany | Article | Witt, Stefanie ; Kristensen, Kaja ; Wiegand-Grefe, Silke ; Boettcher, Johannes ; Blömeke, Janika ; Wingartz, Christina ; Bullinger, Monika ; Quitmann, Julia |
| 3-Dez-2021 | | | Health-related Quality of Life of children and adolescents with congenital hyperinsulinism : a scoping review | Article | Kristensen, Kaja ; Quitmann, Julia ; Witt, Stefanie |
| 22-Feb-2019 | | | The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia : a condition-specific approach | Article | Dellenmark-Blom, Michaela ; Chaplin, John Eric ; Quitmann, Julia Hannah ; Jönsson, Linus ; Gatzinsky, Vladimir ; Dingemann, Jens ; Abrahamsson, Kate |
| 14-Jun-2021 | | | Patient-reported outcomes : the value of observational assessments | Article | Witt, Stefanie ; Blömeke, Janika ; Bullinger, Monika ; Dingemann, Jens ; Dellenmark-Blom, Michaela ; Quitmann, Julia |
| 17-Sep-2021 | | | Parent-child assessment of Strengths and difficulties of German children and adolescents born with esophageal atresia | Article | Witt, Stefanie ; Dingemann, Jens ; Dellenmark-Blom, Michaela ; Quitmann, Julia |
Collection's Items (Sorted by Einreichdatum in Absteigend order): 521 to 540 of 9905
