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Collection's Items (Sorted by Submit Date in Descending order): 501 to 520 of 9882
Issue DateDocument in REPOSITAccess Full TextTitleTypeAuthor(s)
9-Feb-2019Validation of the Greek version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaireArticleDrosatou, Chrysoula ; Vlachopapadopoulou, Elpis-Athina ; Bullinger, Monika ; Quitmann, Julia  ; Silva, Neuza ; Salemi, Georgia ; Pavlopoulou, Ioanna ; Michalacos, Stefanos ; Tsoumakas, Konstantinos 
27-Sep-2017Children's psychosocial functioning and parents' quality of life in paediatric short stature : the mediating role of caregiving stressArticleSilva, Neuza ; Bullinger, Monika ; Sommer, Rachel ; Rohenkohl, Anja ; Witt, Stefanie ; Quitmann, Julia  
16-Sep-2016An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia : development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)ArticleSommer, Rachel ; Blömeke, Janika ; Dabs, Michaela ; Witt, Stefanie ; Bullinger, Monika ; Quitmann, Julia  
28-Jul-2016Coping strategies used by children and adolescents born with esophageal atresia : a focus group study obtaining the child and parent perspectiveArticleDellenmark-Blom, Michaela ; Chaplin, John Eric ; Jönsson, Linus ; Gatzinsky, Vladimir ; Quitmann, Julia H.  ; Abrahamsson, Kate 
Sep-2024Aktivierung von selbsterstellten immateriellen Vermögenswerten als bilanzpolitisches Mittel in der Corona-Krise?ArticleBehrendt-Geisler, Anneke  
1-Mar-2017Development and psychometric evaluation of the MetabQoL 1.0 : a quality of life questionnaire for paediatric patients with intoxication-type inborn errors of metabolismArticleZeltner, Nina A. ; Baumgartner, Matthias R. ; Bondarenko, Aljona ; Ensenauer, Regina ; Karall, Daniela ; Kölker, Stefan ; Mühlhausen, Chris ; Scholl-Bürgi, Sabine ; Thimm, Eva ; Quitmann, Julia  ; Burgard, Peter ; Landolt, Markus A. ; Huemer, Martina 
30-Jun-2014Quality of life as patient-reported outcomes : principles of assessmentArticleBullinger, Monika ; Quitmann, Julia  
1-Jan-2016Living with intoxication-type inborn errors of metabolism : a qualitative analysis of interviews with paediatric patients and their parentsArticleZeltner, Nina A. ; Landolt, Markus A. ; Baumgartner, Matthias R. ; Lageder, Sarah ; Quitmann, Julia  ; Sommer, Rachel ; Karall, Daniela ; Mühlhausen, Chris ; Schlune, Andrea ; Scholl-Bürgi, Sabine ; Huemer, Martina 
1-Oct-2018The esophageal-atresia-quality-of-life questionnaires : feasibility, validity and reliability in Sweden and GermanyArticleDellenmark-Blom, Michaela ; Dingemann, Jens ; Witt, Stefanie ; Quitmann, Julia H.  ; Jönsson, Linus ; Gatzinsky, Vladimir ; Chaplin, John Eric ; Bullinger, Monika ; Flieder, Sofie ; Ure, Benno M. ; Dingemann, Carmen ; Abrahamsson, Kate 
Jul-2024Einlullen, verschleiern, Zweifel säen : wie die Fossillobby unsere Zukunft gefährdetArticleStöcker, Christian  
14-Feb-2022Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO) : study protocol for a controlled multi-center cohort studyArticleHebestreit, Helge ; Zeidler, Cornelia ; Schippers, Christopher ; de Zwaan, Martina ; Deckert, Jürgen ; Heuschmann, Peter ; Krauth, Christian ; Bullinger, Monika ; Berger, Alexandra ; Berneburg, Mark ; Brandstetter, Lilly ; Deibele, Anna ; Dieris-Hirche, Jan ; Graeßner, Holm ; Gündel, Harald ; Herpertz, Stephan ; Heuft, Gereon ; Lapstich, Anne-Marie ; Lücke, Thomas ; Maisch, Tim ; Mundlos, Christine ; Petermann-Meyer, Andrea ; Müller, Susanne ; Ott, Stephan ; Pfister, Lisa ; Quitmann, Julia  ; Romanos, Marcel ; Rutsch, Frank ; Schaubert, Kristina ; Schubert, Katharina ; Schulz, Jörg Bernhard ; Schweiger, Susann ; Tüscher, Oliver ; Ungethüm, Kathrin ; Wagner, Thomas O. F. ; Haas, Kirsten 
27-Nov-2021Rare pediatric diseases and pathways to psychosocial care : a qualitative interview study with professional experts working with affected families in GermanyArticleWitt, Stefanie ; Kristensen, Kaja ; Wiegand-Grefe, Silke ; Boettcher, Johannes ; Blömeke, Janika ; Wingartz, Christina ; Bullinger, Monika ; Quitmann, Julia  
3-Dec-2021Health-related Quality of Life of children and adolescents with congenital hyperinsulinism : a scoping reviewArticleKristensen, Kaja ; Quitmann, Julia  ; Witt, Stefanie 
22-Feb-2019The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia : a condition-specific approachArticleDellenmark-Blom, Michaela ; Chaplin, John Eric ; Quitmann, Julia Hannah  ; Jönsson, Linus ; Gatzinsky, Vladimir ; Dingemann, Jens ; Abrahamsson, Kate 
14-Jun-2021Patient-reported outcomes : the value of observational assessmentsArticleWitt, Stefanie ; Blömeke, Janika ; Bullinger, Monika ; Dingemann, Jens ; Dellenmark-Blom, Michaela ; Quitmann, Julia  
17-Sep-2021Parent-child assessment of Strengths and difficulties of German children and adolescents born with esophageal atresiaArticleWitt, Stefanie ; Dingemann, Jens ; Dellenmark-Blom, Michaela ; Quitmann, Julia  
25-Nov-2015Wie beurteilen junge Menschen mit disproportioniertem Kleinwuchs ihre Lebensqualität und mit welchen Faktoren ist sie assoziiert?ArticleRohenkohl, Anja C. ; Sommer, Rachel ; Bestges, Stephanie ; Kahrs, Sabine ; Klingebiel, Karl-Heinz ; Bullinger, Monika ; Quitmann, Julia  
26-Jun-2020Health-related quality of life and psychosocial morbidity in anorectal malformation and Hirschsprung's diseaseArticleFeng, Xiaoyan ; Lacher, Martin ; Quitmann, Julia  ; Witt, Stefanie ; Witvliet, Marieke J. ; Mayer, Steffi 
12-Dec-2023Health-related quality of life in pre-pubertal children with pediatric growth hormone deficiency : 12-month results from a phase 3 clinical trial of once-weekly somatrogon versus once-daily somatropinArticleLoftus, Jane ; Quitmann, Julia  ; Valluri, Srinivas Rao 
6-Mar-2021Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia : a Swedish-German cross-sectional studyArticleWitt, Stefanie ; Dellenmark-Blom, Michaela ; Kuckuck, Susanne ; Dingemann, Jens ; Abrahamsson, Kate ; Dingemann, Carmen ; Chaplin, John Eric ; Ure, Benno ; Bullinger, Monika ; Gatzinsky, Vladimir ; Jönsson, Linus ; Quitmann, Julia Hannah  
Collection's Items (Sorted by Submit Date in Descending order): 501 to 520 of 9882