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Issue Date	Document in REPOSIT	Access Full Text	Title	Type	Author(s)
1-Aug-2021			Feasibility, reliability, and validity of the Turkish version of the esophageal-Atresia-Quality-of-Life questionnaires to assess condition-specific Quality of Life in children and adolescents born with esophageal Atresia	Article	Soyer, Tutku ; Arslan, Umut Ece ; Ulukaya Durakbaşa, Çiğdem ; Aydöner, Sinem ; Boybeyi-Türer, Özlem ; Quitmann, Julia H.  ; Dingemann, Jens ; Dellenmark-Blom, Michaela
18-May-2020			Health-related quality of life assessment in children and their families : aspects of importance to the pediatric surgeon	Article	Blömeke, Janika ; Witt, Stefanie ; Bullinger, Monika ; Dingemann, Jens ; Dellenmark-Blom, Michaela ; Quitmann, Julia
2016			Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the Netherlands	Article	Rohenkohl, Anja ; Stalman, Susanne ; Kamp, Gerdine ; Bullinger, Monika ; Quitmann, Julia
18-May-2020			Basic principles of health-related quality of life in parents and caregivers of pediatric surgical patients with rare congenital malformations : a scoping review	Article	Witt, Stefanie ; Blömeke, Janika ; Bullinger, Monika ; Dingemann, Jens ; Quitmann, Julia
17-May-2011			The capacity to see things from the child's point of view : assessing insightfulness in mothers with and without a diagnosis of depression	Article	Quitmann, Julia H.  ; Kriston, Levente ; Romer, Georg ; Ramsauer, Brigitte
21-May-2022			Factors of family impact in a Swedish-German cohort of children born with esophageal atresia	Article	Dellenmark-Blom, Michaela ; Abrahamsson, Kate ; Dingemann, Jens ; Witt, Stefanie ; Dingemann, Carmen ; Jönsson, Linus ; Gatzinsky, Vladimir ; Bullinger, Monika ; Ure, Benno M. ; Chaplin, John Eric ; Quitmann, Julia Hannah
23-Mar-2024			Result Assessment Tool : software to support studies based on data from search engines	inProceedings	Sünkler, Sebastian ; Yagci, Nurce ; Schultheiß, Sebastian  ; von Mach, Sonja ; Lewandowski, Dirk
6-Jul-2022			Lebensqualität und erlebte Belastungen von Patient*innen mit Verdacht auf eine Seltene Erkrankung : erste Erkenntnisse aus der ZSE-DUO Studie	Article	Witt, Stefanie ; Kristensen, Kaja ; Blömeke, Janika ; Hebestreit, Helge ; Wocker, Maximilian ; Pfister, Lisa ; Bullinger, Monika ; Tüscher, Oliver ; Deckert, Jürgen ; Graeßner, Holm ; Lapstich, Anne-Marie ; de Zwaan, Martina ; Mundlos, Christine ; Quitmann, Julia Hannah
4-Nov-2014			Die Lebensqualität junger Erwachsener nach einer Wachstumshormonbehandlung im Kindesalter	Article	Quitmann, Julia H.  ; Rohenkohl, Anja ; Kammerer, U. ; Schöfl, C. ; Bullinger, Monika ; Dörr, Helmuth Günther
14-Oct-2015			Evaluation eines selbsthilfegestützten psychosozialen Interventionsangebotes für Kinder und Jugendliche mit disproportionalem Kleinwuchs : selbsthilfegestützte Intervention für Kinder und Jugendliche mit Kleinwuchs	Article	Rohenkohl, Anja ; Sommer, Rachel ; Kahrs, S. ; Bullinger, Monika ; Klingebiel, Katja ; Quitmann, Julia H.
20-Sep-2019			Pretend play as an intervention for children with cancer : a feasibility study	Article	Frygner-Holm, Sara ; Russ, Sandra ; Quitmann, Julia  ; Ring, Lena ; Zyga, Olena ; Hansson, Mats ; Ljungman, Gustaf ; Höglund, Anna T.
31-Mar-2014			Insightfulness and later infant attachment in clinically depressed and nonclinical mothers	Article	Ramsauer, Brigitte ; Lotzin, Annett ; Quitmann, Julia H.  ; Becker-Stoll, Fabienne ; Tharner, Anne ; Romer, Georg
6-Oct-2023			Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO) : a prospective, controlled trial with a two-phase cohort design	Article	Hebestreit, Helge ; Lapstich, Anne-Marie ; Brandstetter, Lilly ; Krauth, Christian ; Deckert, Jürgen ; Haas, Kirsten ; Pfister, Lisa ; Witt, Stefanie ; Schippers, Christopher ; Dieris-Hirche, Jan ; Maisch, Tim ; Tüscher, Oliver ; Bârlescu, Lavinia ; Berger, Alexandra ; Berneburg, Mark ; Britz, Vanessa ; Deibele, Anna ; Graeßner, Holm ; Gündel, Harald ; Heuft, Gereon ; Lücke, Thomas ; Mundlos, Christine ; Quitmann, Julia  ; Rutsch, Frank ; Schubert, Katharina ; Schulz, Jörg Bernhard ; Schweiger, Susann ; Zeidler, Cornelia ; Zeltner, Lena ; de Zwaan, Martina
23-Oct-2023			Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2-7 across 14 countries	Article	Quitmann, Julia
11-Aug-2023			Living with a rare disease : experiences and needs in pediatric patients and their parents	Article	Witt, Stefanie ; Schuett, Katharina ; Wiegand-Grefe, Silke ; Boettcher, Johannes ; Quitmann, Julia
11-Aug-2023			Health-related quality of life, stress, caregiving burden and special needs of parents caring for a short-statured child-review and recommendations for future research	Article	Lackner, Lea ; Quitmann, Julia  ; Kristensen, Kaja ; Witt, Stefanie
Dec-2014			Wie erleben betroffene Kinder und Jugendliche ihren Kleinwuchs, und wie ist die Sicht ihrer Eltern?	Article	Quitmann, Julia  ; Rohenkohl, Anja ; Sommer, Rachel ; Petzold, Sophie ; Bullinger-Naber, Monika
29-Mar-2023			Maßnahmen für einen optimalen Zugang von Kindern mit seltenen Erkrankungen und ihrer Familien zur psychosozialen Versorgung	Article	Witt, Stefanie ; Kristensen, Kaja ; Wiegand-Grefe, Silke ; Quitmann, Julia
2-Apr-2014			Validation of the Flemish version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire	Article	Rohenkohl, A. C. ; De Schepper, J. ; Vanderfaeillie, J. ; Fricke, K. ; Hendrickx, S. ; Lagrou, K. ; Bullinger, Monika ; Quitmann, Julia
17-Mar-2023			Caregiving burden and special needs of parents in the care of their short-statured children : a qualitative approach	Article	Lackner, Lea ; Quitmann, Julia Hannah  ; Witt, Stefanie