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Erscheinungsdatum	Dokument in REPOSIT	Zugang zum Volltext	Titel	Typ	Autorenschaft
19-Jun-2018			Quality of life in parents of children born with esophageal atresia	Article	Witt, Stefanie ; Dellenmark-Blom, Michaela ; Dingemann, Jens ; Dingemann, Carmen ; Ure, Benno M. ; Gomez, Barbara ; Bullinger, Monika ; Quitmann, Julia
17-Feb-2018			The psychometric evaluation of the quality of life in short stature youth (QoLISSY) instrument for German children born small for gestational age	Article	Sommer, Rachel ; Blömeke, Janika ; Bullinger, Monika ; Quitmann, Julia
16-Sep-2018			Health-related quality of life experiences in children and adolescents born with esophageal atresia : a Swedish-German focus group study	Article	Witt, Stefanie ; Dellenmark-Blom, Michaela ; Flieder, Sofie ; Dingemann, Jens ; Abrahamsson, Kate ; Jönsson, Linus ; Gatzinsky, Vladimir ; Chaplin, John Eric ; Ure, Benno ; Dingemann, Carmen ; Bullinger, Monika ; Sommer, Rachel ; Quitmann, Julia Hannah
30-Jun-2022			Reliability and validity of the Polish version of the Esophageal-Atresia-Quality-of-Life questionnaires to assess condition-specific quality of Life in children and adolescents born with esophageal atresia	Article	Rozensztrauch, Anna ; Smigiel, Robert ; Patkowski, Dariusz ; Gerus, Sylwester ; Kłaniewska, Magdalena ; Quitmann, Julia Hannah  ; Dellenmark-Blom, Michaela
Nov-2017			Understanding, assessing and improving health-related quality of life of young people with achondroplasia : a collaboration between a patient organization and academic medicine	Article	Witt, Stefanie ; Rohenkohl, Anja ; Bullinger, Monika ; Sommer, Rachel ; Kahrs, Sabine ; Klingebiel, Karl-Heinz ; Klingebiel, Ruzena ; Quitmann, Julia
13-Nov-2022			The Chinese Mandarin version of the esophageal-atresia-quality-of-life questionnaires for children and adolescents : evaluation of linguistic and content validity	Article	Li, Siqi ; Dellenmark-Blom, Michaela ; Zhao, Yong ; Gu, Yichao ; Li, Shuangshuang ; Yang, Shen ; Quitmann, Julia H.  ; Huang, Jinshi
11-Sep-2019			Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia : a German cross-sectional study	Article	Witt, Stefanie ; Bloemeke, Janika ; Bullinger, Monika ; Dingemann, Jens ; Dellenmark-Blom, Michaela ; Quitmann, Julia
8-Mär-2018			Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health : the Achondroplasia Personal Life Experience Scale (APLES)	Article	Bloemeke, Janika ; Sommer, Rachel ; Witt, Stefanie ; Dabs, Michaela ; Badia, Francisco Javier ; Bullinger, Monika ; Quitmann, Julia
10-Apr-2017			Validation of the Italian quality of life in Short Stature Youth (QoLISSY) questionnaire	Article	Quitmann, Julia  ; Giammarco, A. ; Maghnie, Mohamad ; Napoli, Flavia ; Di Giovanni, Ilaria ; Carducci, Chiara ; Mohn, Angelika ; Bullinger, Monika ; Sommer, Rachel
5-Mai-2017			Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia	Article	Dellenmark-Blom, Michaela ; Abrahamsson, Kate ; Quitmann, Julia H.  ; Sommer, Rachel ; Witt, Stefanie ; Dingemann, Jens ; Flieder, Sofie ; Jönsson, Linus ; Gatzinsky, Vladimir ; Bullinger, Monika ; Ure, Benno M. ; Dingemann, Carmen ; Chaplin, John Eric
9-Feb-2019			Validation of the Greek version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire	Article	Drosatou, Chrysoula ; Vlachopapadopoulou, Elpis-Athina ; Bullinger, Monika ; Quitmann, Julia  ; Silva, Neuza ; Salemi, Georgia ; Pavlopoulou, Ioanna ; Michalacos, Stefanos ; Tsoumakas, Konstantinos
27-Sep-2017			Children's psychosocial functioning and parents' quality of life in paediatric short stature : the mediating role of caregiving stress	Article	Silva, Neuza ; Bullinger, Monika ; Sommer, Rachel ; Rohenkohl, Anja ; Witt, Stefanie ; Quitmann, Julia
16-Sep-2016			An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia : development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)	Article	Sommer, Rachel ; Blömeke, Janika ; Dabs, Michaela ; Witt, Stefanie ; Bullinger, Monika ; Quitmann, Julia
28-Jul-2016			Coping strategies used by children and adolescents born with esophageal atresia : a focus group study obtaining the child and parent perspective	Article	Dellenmark-Blom, Michaela ; Chaplin, John Eric ; Jönsson, Linus ; Gatzinsky, Vladimir ; Quitmann, Julia H.  ; Abrahamsson, Kate
Sep-2024			Aktivierung von selbsterstellten immateriellen Vermögenswerten als bilanzpolitisches Mittel in der Corona-Krise?	Article	Behrendt-Geisler, Anneke
1-Mär-2017			Development and psychometric evaluation of the MetabQoL 1.0 : a quality of life questionnaire for paediatric patients with intoxication-type inborn errors of metabolism	Article	Zeltner, Nina A. ; Baumgartner, Matthias R. ; Bondarenko, Aljona ; Ensenauer, Regina ; Karall, Daniela ; Kölker, Stefan ; Mühlhausen, Chris ; Scholl-Bürgi, Sabine ; Thimm, Eva ; Quitmann, Julia  ; Burgard, Peter ; Landolt, Markus A. ; Huemer, Martina
30-Jun-2014			Quality of life as patient-reported outcomes : principles of assessment	Article	Bullinger, Monika ; Quitmann, Julia
1-Jan-2016			Living with intoxication-type inborn errors of metabolism : a qualitative analysis of interviews with paediatric patients and their parents	Article	Zeltner, Nina A. ; Landolt, Markus A. ; Baumgartner, Matthias R. ; Lageder, Sarah ; Quitmann, Julia  ; Sommer, Rachel ; Karall, Daniela ; Mühlhausen, Chris ; Schlune, Andrea ; Scholl-Bürgi, Sabine ; Huemer, Martina
1-Okt-2018			The esophageal-atresia-quality-of-life questionnaires : feasibility, validity and reliability in Sweden and Germany	Article	Dellenmark-Blom, Michaela ; Dingemann, Jens ; Witt, Stefanie ; Quitmann, Julia H.  ; Jönsson, Linus ; Gatzinsky, Vladimir ; Chaplin, John Eric ; Bullinger, Monika ; Flieder, Sofie ; Ure, Benno M. ; Dingemann, Carmen ; Abrahamsson, Kate
Jul-2024			Einlullen, verschleiern, Zweifel säen : wie die Fossillobby unsere Zukunft gefährdet	Article	Stöcker, Christian